The Sandcastle Trust’s trustees are currently working on a new exciting three year strategy which we hope, will serve as a roadmap...
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The Sandcastle Trust’s trustees are currently working on a new exciting three year strategy which we hope, will serve as a roadmap...
I'm Laura, an NHS doctor, and mum to 6 year old Freddie. I found myself catapulted into the world of rare genetic disorders when my son...
Enter our prize draw to win a week’s break in the school summer holidays at our Sandcastle Trust caravan located at Parkdean...
Rare Disease Day is an important international awareness day that takes place every year on 28th February (or for leap years on 29th...
Our friends at Disabled Living are bringing their Kidz to Adultz Exhibition to Coventry in March. Entry is free and you can discover...
My name is Jess. I worked as a paediatric nurse for 20 years and I’m a mummy to three wonderful children: Daisy, Lola and Alfie....
The Sandcastle Trust is pleased to be working in partnership with Rareminds to offer a new free, confidential counselling service for...
Time spent together as a family creating special memories is precious, even more so during the festive season and when a loved one has a...
The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board.
Meet Sam, a HR Director, mum to Hollie...
Did you know that Saturday 5 August is National Sandcastle Day? No? We had no idea it existed either, but we were very excited when we...
Are you interested in guiding the work of a charity who work to support the emotional wellbeing and resilience of families living with a...
A huge thank you to The Desford Striders Running Club who selected The Sandcastle Trust as their Charity of the Year in 2022.
The...
Unfortunately it has been announced that Amazon Smile, the scheme in which customers can donate 0.5% of the value of purchases to a...
Our film ‘Oscar and Theo’s Sandcastle Memory’ is an entrant in this year’s Smiley Charity Film Awards! The Smiley Charity Film...
There are several ways to support us this Christmas, here are some ideas:
This year families living...
A heartfelt THANK YOU to these fundraising superstars who recently took on the Cycle Active Coast to Coast to raise much needed funds...
A big THANK YOU to the wonderful pupils of Foxes class at Danehill Primary School. They held an art exhibition based on their topic this term which has been their heroes. They then priced their artwork to sell to their parents and raise funds towards The Sandcastle Trust’s Holiday Home Appeal. Well done for producing such beautiful artwork and raising such a fantastic amount to help support families living with a rare genetic condition.
This June The Sandcastle Trust hosted a virtual ‘Bake your Own’ Platinum Jubilee Family Afternoon Tea to help the rare genetic...
A huge congratulations and THANK YOU to the cast of ‘A Night At the Musicals’ who bought the house down last night and raised much...
The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.
Our Sandcastle Memories programme forms the core of our work and provides respite breaks to affected families.
For 12 days, from 6 – 21 December 2021, Ecclesiastical Insurance will be donating a total of £120,000 to charities.
120 lucky...
At the 2021 Spending Review, Rishi Sunak did not announce any dedicated COVID recovery, or long-term funding for disabled children’s...
The Sandcastle Trust had 2 amazing runners in the London Marathon on Sunday; Paula and Matt. 4 marvellous runners; Jenny, Bethany, Brett and Coral also completed the marathon virtually in their local areas
Looking to get rid of your clutter? Then why not donate to The Sandcastle Trust whilst doing so!
By decluttering your home, you can...
Make your online Christmas shopping clicks count this year!
We've partnered with two popular fundraising schemes Amazon Smile and...
Throughout the coronavirus pandemic The Sandcastle Trust has been more committed than ever to supporting families affected by a rare genetic condition but sadly we have had to postpone many Sandcastle Memories that involve travel. We have therefore been working hard to diversify the way that we provide fun and respite to affected families. Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund, has now helped us to launch a new category of support – ‘At Home’ Sandcastle Memories. You can find out more about ‘At Home’ Sandcastle Memories and download an application form here:
The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board – Meet Mina.
A new interactive online patient tool has been developed to help people with rare diseases better understand their risk of Covid-19.
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The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation,...
The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation,...