The Sandcastle Trust’s trustees are currently working on a new exciting three year strategy which we hope, will serve as a roadmap...
The Sandcastle Trust welcomes new trustee
Date: 01-01-1970
I'm Laura, an NHS doctor, and mum to 6 year old Freddie. I found myself catapulted into the world of rare genetic disorders when my son...
Win a break in our adapted caravan in Skegness!
Date: 01-01-1970
Enter our prize draw to win a week’s break in the school summer holidays at our Sandcastle Trust caravan located at Parkdean...
Its Rare Disease Day – Lets Talk Language.
Date: 01-01-1970
Rare Disease Day is an important international awareness day that takes place every year on 28th February (or for leap years on 29th...
Kidz to Adultz Launch ‘The Connection Hub’
Date: 01-01-1970
Our friends at Disabled Living are bringing their Kidz to Adultz Exhibition to Coventry in March. Entry is free and you can discover...
The Sandcastle Trust welcomes new trustee
Date: 01-01-1970
My name is Jess. I worked as a paediatric nurse for 20 years and I’m a mummy to three wonderful children: Daisy, Lola and Alfie....
New Counselling Service
Date: 01-01-1970
The Sandcastle Trust is pleased to be working in partnership with Rareminds to offer a new free, confidential counselling service for...
2023 Christmas Appeal – Thank you for helping us create magical memories
Date: 01-01-1970
Time spent together as a family creating special memories is precious, even more so during the festive season and when a loved one has a...
The Sandcastle Trust welcomes a new trustee onto its board
Date: 01-01-1970
The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board.
Meet Sam, a HR Director, mum to Hollie...
The Sandcastle Trust launches 2023 Summer Sandcastle Memories Appeal
Date: 01-01-1970
Did you know that Saturday 5 August is National Sandcastle Day? No? We had no idea it existed either, but we were very excited when we...
We are recruiting new Trustees
Date: 01-01-1970
Are you interested in guiding the work of a charity who work to support the emotional wellbeing and resilience of families living with a...
A huge thank you to The Desford Striders Running Club!
Date: 01-01-1970
A huge thank you to The Desford Striders Running Club who selected The Sandcastle Trust as their Charity of the Year in 2022.
The...
Amazon Smile
Date: 01-01-1970
Unfortunately it has been announced that Amazon Smile, the scheme in which customers can donate 0.5% of the value of purchases to a...
Oscar and Theo’s Sandcastle Memory
Date: 01-01-1970
Our film ‘Oscar and Theo’s Sandcastle Memory’ is an entrant in this year’s Smiley Charity Film Awards! The Smiley Charity Film...
Support The Sandcastle Trust this Christmas
Date: 01-01-1970
There are several ways to support us this Christmas, here are some ideas:
Donate to our Christmas Appeal
This year families living...
Fundraising Superstars!
Date: 01-01-1970
A heartfelt THANK YOU to these fundraising superstars who recently took on the Cycle Active Coast to Coast to raise much needed funds...
Thank you to Danehill Primary School!
Date: 01-01-1970
A big THANK YOU to the wonderful pupils of Foxes class at Danehill Primary School. They held an art exhibition based on their topic this term which has been their heroes. They then priced their artwork to sell to their parents and raise funds towards The Sandcastle Trust’s Holiday Home Appeal. Well done for producing such beautiful artwork and raising such a fantastic amount to help support families living with a rare genetic condition.
The Sandcastle Trust hosts virtual ‘Bake your Own’ Platinum Jubilee Family Afternoon Tea for the rare genetic condition community
Date: 01-01-1970
This June The Sandcastle Trust hosted a virtual ‘Bake your Own’ Platinum Jubilee Family Afternoon Tea to help the rare genetic...
‘A Night At the Musicals’
Date: 01-01-1970
A huge congratulations and THANK YOU to the cast of ‘A Night At the Musicals’ who bought the house down last night and raised much...
The Sandcastle Trust Launches Holiday Home Appeal
Date: 01-01-1970
The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.
Our Sandcastle Memories programme forms the core of our work and provides respite breaks to affected families.
12 Days of Giving 2021
Date: 01-01-1970
For 12 days, from 6 – 21 December 2021, Ecclesiastical Insurance will be donating a total of £120,000 to charities.
120 lucky...
The Sandcastle Trust joins other organisations in the Disabled Children’s partnership and signs open letter to the government
Date: 01-01-1970
At the 2021 Spending Review, Rishi Sunak did not announce any dedicated COVID recovery, or long-term funding for disabled children’s...
Thank you to our 2021 London Marathon runners
Date: 01-01-1970
The Sandcastle Trust had 2 amazing runners in the London Marathon on Sunday; Paula and Matt. 4 marvellous runners; Jenny, Bethany, Brett and Coral also completed the marathon virtually in their local areas
Donate your unwanted items and raise money for The Sandcastle Trust
Date: 01-01-1970
Looking to get rid of your clutter? Then why not donate to The Sandcastle Trust whilst doing so!
By decluttering your home, you can...
Did you know you can support The Sandcastle Trust this Christmas just by shopping online – at no extra cost to you?
Date: 01-01-1970
Make your online Christmas shopping clicks count this year!
We've partnered with two popular fundraising schemes Amazon Smile and...
The Sandcastle Trust granted lottery funds
Date: 01-01-1970
Throughout the coronavirus pandemic The Sandcastle Trust has been more committed than ever to supporting families affected by a rare genetic condition but sadly we have had to postpone many Sandcastle Memories that involve travel. We have therefore been working hard to diversify the way that we provide fun and respite to affected families. Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund, has now helped us to launch a new category of support – ‘At Home’ Sandcastle Memories. You can find out more about ‘At Home’ Sandcastle Memories and download an application form here:
The Sandcastle Trust welcomes a new trustee onto its board
Date: 01-01-1970
The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board – Meet Mina.
NEW interactive online patient tool for people with rare diseases to better understand their risk of Covid-19
Date: 01-01-1970
A new interactive online patient tool has been developed to help people with rare diseases better understand their risk of Covid-19.
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The Sandcastle trust launches emergency coronavirus appeal
Date: 01-01-1970
The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation,...
Covid-19: A Message from The Sandcastle Trust Team
Date: 01-01-1970
The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation,...
