The Sandcastle Trust walks alongside families living with a rare genetic condition providing regular opportunities for family fun and respite to help families build positive memories, strengthen family relationships, reduce isolation, and improve mental wellbeing and resilience.

Start Here - Registration

Register as a Sandcastle Family - In order to be able to access our services, we ask that families complete an online registration form.

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Sandcastle Memories

Family Respite - Find out how you can apply for a Sandcastle Memory in the form of a UK based short family respite break, special day trip or annual attraction pass.

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Sandcastle Smiles

Fun at Home - Find out how we can arrange a special bespoke respite activity for your family in your own home. We also run a programme of regular events and activities for families to enjoy together.

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Sandcastle Support Hub

A list of organisations and other sources of guidance, advice and practical help that you may find useful if you or a family member has been diagnosed with a rare genetic condition.

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Sandcastle Counselling Service

*coming soon*