Our Vision

Our Vision is a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer – most importantly enjoying time together as a family.

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How We Help

The Sandcastle Trust aims to provide some fun and respite for families where a parent or child has a rare genetic condition.

Short Breaks

The Sandcastle Trust provides grants to affected families for short breaks in the UK with one of our approved partners or alternatively can assist affected families plan their own accessible family breaks.

Special Day Trips & Attraction Passes

The Sandcastle Trust provides grants to affected families for a wide variety of day trips or experiences, for example to the seaside, a theme park or the theatre. We can also provide grants for season tickets or annual passes to attractions such as zoos or steam railways.

Group Fun Days

The Sandcastle Trust can provide grants to rare genetic patient groups or small disorder specific charities to host family meet ups and fun days.

Fundraising

Whether you'd like to attend a fundraising event organised by The Sandcastle Trust, take on a sporting challenge or fundraise for us in some other way, you can find out more here:

Special Events

The Sandcastle Trust hosts a number of events throughout the year to help raise vital funds, raise awareness of our work and to have fun! Please see our upcoming events and join us to help to make a difference.

Challenges

If you're looking to take on a challenge whilst raising money for a great cause then look no further. If you want to run a marathon, abseil or climb the UK's highest peaks - we have a challenge to suit everyone.

Fundraise your way

There are many ways to get involved and help The Sandcastle Trust help others. If you are thinking of planning a fundraising event of your own then the information on this page will help you.

“Our family’s experience is where the idea of The Sandcastle Trust came from. We hope to help other families like ours who are affected by rare genetic conditions create positive family memories”

Danielle Singleton

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“We were fortunate enough to be offered complimentary tickets on a Polar Express train ride for us all via the charity. We had a wonderful evening….Rare genetic conditions can be extremely difficult to deal with as are all disabilities, but having the cherished moments to look forward to and refer back to is a wonderful gift. Such a simple idea, but so powerful!”

John & Julie Davidson

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"Frances feels very strongly that young people do not get enough support once you transfer from paediatrics to adult services; there is less of a safety net. We would like to see better support structures for mental health for people who have rare diseases and syndromes. The teenagers and young adults have nowhere to go for support."

Becky Hopkins

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“Isla’s Dravet was a spelling mistake in her genes. Such a tiny thing caused devastation in our world…

Each day is precious with our Isla and I plan to waste no days. Thanks to The Sandcastle Trust Isla met Santa this year surrounded by all her family.”

Rachael Thomas

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