Our Vision

Our Vision is a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer – most importantly enjoying life experiences and making memories as a family.

How We Help

The Sandcastle Trust aims to provide some fun and respite for families where a parent or child has a rare genetic condition.

There are more than 6,000 genetic conditions. Each one affects less than 0.1% of the population but together they are one of the greatest causes of disability and early death, affecting three million families in the UK. (source: National Human Genome Research Institute)

Many are life-limiting, all are life-changing.

The Sandcastle Trust supports people of all ages living with a diagnosis of a rare genetic condition, to build lasting positive family memories and strengthen their family relationships, through the granting of Sandcastle Memories.

Get Involved

Become part of Team Sandcastle and raise money to help us support families affected by rare genetic conditions.

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Upcoming Events

The London Landmarks Half Marathon 2022

The London Landmarks Half Marathon is back for its fourth year! We would love you to join Team Sandcastle for this event!  Please email us at info@sandcastletrust.org to register your interest.

Run Reigate Half Marathon (10k, 5k Race and Kids Race also available)

The multi-award-winning Run Reigate Half Marathon, 10K Race, 5K Race and Kids Race will be back on 18th September 2022 in Reigate Priory...