Our Vision

Our Vision is a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer – most importantly enjoying time together as a family.


How We Help

The Sandcastle Trust aims to provide some fun and respite for families where a parent or child has a rare genetic condition.

Short Breaks

The Sandcastle Trust provides grants to affected families for short breaks in the UK with one of our approved partners or alternatively can assist affected families plan their own accessible family breaks.

Special Day Trips & Attraction Passes

The Sandcastle Trust provides grants to affected families for a wide variety of day trips or experiences, for example to the seaside, a theme park or the theatre. We can also provide grants for season tickets or annual passes to attractions such as zoos or steam railways.

Group Fun Days

The Sandcastle Trust can provide grants to rare genetic patient groups or small disorder specific charities to host family meet ups and fun days.

Get Involved

Become part of Team Sandcastle and raise money to help us support families affected by rare genetic conditions.

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Upcoming Events

Inflatable 5K Challenge – London

Join Team Sandcastle and raise money to help us support families affected by rare genetic conditions by taking part in the Inflatable 5k Challenge (10k also available).  The ultimate 5k inflatable obstacle course is packed with some of the largest obstacles in the UK!

Royal Parks Half Marathon – October 2018

The Royal Parks Foundation Half Marathon takes place each October,  it is an amazing course that showcases the iconic sights of London through four Royal Parks (Hyde Park, Kensington Gardens, St James’s Park, and The Green Park).

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