Our Vision

Our Vision is a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer – most importantly enjoying life experiences and making memories as a family.

How We Help

The Sandcastle Trust aims to provide some fun and respite for families where a parent or child has a rare genetic condition.

There are more than 6,000 genetic conditions. Each one affects less than 0.1% of the population but together they are one of the greatest causes of disability and early death, affecting three million families in the UK. (source: National Human Genome Research Institute)

Many are life-limiting, all are life-changing.

The Sandcastle Trust supports people of all ages living with a diagnosis of a rare genetic condition, to build lasting positive family memories and strengthen their family relationships, through the granting of Sandcastle Memories.

Get Involved

Become part of Team Sandcastle and raise money to help us support families affected by rare genetic conditions.

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Upcoming Events

Snowdon at Night

Explore the highest mountain in Wales and England by moonlight!

You will follow the Llanberis track to the summit using torches to...

Thames Path Challenge

Take on the Thames Path Challenge following England's greatest river!

The full 100km route heads from Putney Bridge past Hampton Court...

Royal Parks Half Marathon

We have the opportunity to take part in the 2022 Royal Parks Half Marathon and we would love you to join Team Sandcastle for this...