Our Vision

Our Vision is a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer – most importantly enjoying life experiences and making memories as a family.

How We Help

There are more than 6,000 genetic conditions. Each one affects less than 0.1% of the population but together they are one of the greatest causes of disability and early death, affecting three million families in the UK. (source: National Human Genome Research Institute)

Many are life-limiting, all are life-changing.

The Sandcastle Trust walks alongside families living with a rare genetic condition to help build lasting positive family memories, strengthen family relationships, improve emotional wellbeing and resilience.

Get Involved

Become part of Team Sandcastle and raise money to help us support families affected by rare genetic conditions.

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