Here’s where you can find all the information you need to get to know The Sandcastle Trust better.

What We Do

Our mission is to support families living with a diagnosis of a rare genetic condition to build lasting, positive family memories and strengthen their family relationships.

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Our Team

Our Board are all committed to guiding The Sandcastle Trust to operate at the highest professional standard whilst believing passionately in the charity’s mission.

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Our Impact

Find out more about our work, the impact that it has and our finances.

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Family Stories

A selection of families describe in their own words the profound impact a diagnosis of a rare genetic condition has had on their family lives and how The Sandcastle Trust has supported them.

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Our Policies

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Our Funders & Supporters

We are fortunate to have received support from these organisations.

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