Our Story

In 2009, at 28 years old Dave, my rugby playing, police officer husband started walking like he was drunk.  On a holiday to Spain with friends, he suddenly lost the ability to wear flip flops, they would fly off his feet – it was the running joke of the holiday.  Fast forward a few months... Read More

Maddison's Story

Feisty, confident Maddison Sherwood dreams of being an actress. The ten-year-old student goes to drama school in her spare time and loves nothing more than singing and dancing.   Maddison has the rare genetic disorder Spinal Muscular Atrophy with Respiratory Distress (SMARD) which means she uses a ventilator and tracheotomy to help her breathe and... Read More

Felix's Story

"In 2012 our third son Felix was born.  At only 2 weeks old it became apparent that he was struggling to thrive and we were consequently referred to a myriad of specialist healthcare services within the NHS.  All of them superbly caring and supportive.  Felix remained somewhat of an enigma to all involved in his care... Read More