We have the opportunity to take part in the 2025 Royal Parks Half Marathon and we would love you to join Team Sandcastle for this...
There are approximately 6,000 diagnosed genetic conditions. Each affects less than 0.1% of the UK’s population, but together they are one of the greatest causes of disability and early death and affect the lives of 3 million people in the UK (source: National Human Genome Research Institute). Many are life limiting, all are life-changing.
Significant challenges to positive emotional health and wellbeing are likely to present themselves to individuals diagnosed with a rare genetic condition and their family members. The Sandcastle Trust walks alongside families living with a rare genetic condition offering a range of impactful emotional health and well-being initiatives.
Become part of Team Sandcastle and raise money to help us support families affected by rare genetic conditions.
We have the opportunity to take part in the 2025 Royal Parks Half Marathon and we would love you to join Team Sandcastle for this...
The London Landmarks Half Marathon is back for its fourth year! We would love you to join Team Sandcastle for this event! Please email us at info@sandcastletrust.org to register your interest.
“Our family’s experience is where the idea of The Sandcastle Trust came from. We hope to help other families like ours who are affected by rare genetic conditions create positive family memories”
Danielle Singleton
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"Louie taught me so much during his life and how to truly love and care for someone. I will miss him every day for the rest of my life."
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"Tabby does not really play with toys, she needs 1:1 supervision and does not play independently. She hates being cooped up indoors and loves to be outside whatever the weather. She has found this winter lockdown particularly hard."
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“It was really easy to apply to the Sandcastle Trust and they were so lovely to deal with. The whole process removed any stress – which is brilliant when you are looking after a profoundly disabled child.”
Ilmarie Braun, Eddie's Mum
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“It was the most memorable couple of days. It was time away when could we feel like a “normal” family - we could forget the medical side of our lives and the constant fighting for Maddison.
“We felt so grateful the children could experience London and have fun.”
Lidia Sherwood, Maddison's Mum
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