NEW interactive online patient tool for people with rare diseases to better understand their risk of Covid-19

A new interactive online patient tool has been developed to help people with rare diseases better understand their risk of Covid-19.

There has been considerable anxiety and confusion among many people living with rare diseases about their level of risk from covid-19 and the precautions they should take.

In response to this, clinical genetics doctors in the UK have collaborated to develop a patient interactive tool that guides patients through a series of questions to better understand their risk and what precautions they should take to look after themselves. The purpose of the tool is to open a conversation with the patient’s primary physician about their Covid19 risk – it does not replace individualised advice.

Here is the link:

This rare disease risk tool should primarily be applied to ADULTS.

Children with rare diseases should follow the RCPCH guidance on shielding: