News

The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation, vulnerability and anxiousness that families affected by a rare genetic condition face every day. The health and wellbeing of our beneficiaries is our top priority and so we have had…

The Sandcastle Trust are proud to be part of the Disabled Children’s Partnership (DCP). and together we are asking the government to give back the £434 million shortfall in funding for social care for disabled children and their families. Every day, disabled children are missing out on £1.2 million of…

The Sandcastle Trust is proud to have recently become a member of the Disabled Children’s Partnership – a growing coalition of more than 60 organisations – campaigning for improved health and social care for disabled children, young people and their families in England. We know that 43% of the British…

On 18 December our lovely ambassador Laura Hamilton hosted a little Sandcastle Trust Christmas party for some families who have been affected by a rare genetic condition. The party was held at Laura’s coffee shop, The Lord Roberts on The Green. Gingerbread decorating, entertainment by the Giggle Company and of…

The parents of Charlie Gard will launch The Charlie Gard Foundation on 1 June with the £1.3 million raised in his name. Charlie died in July last year, a week before his first birthday due to the rare genetic condition Mitochondrial DNA Depletion Syndrome. The Foundation aims to raise awareness…