News

Make your online Christmas shopping clicks count this year! We've partnered with two popular fundraising schemes Amazon Smile and EasyFundraising – that support UK charities by donating a percentage of the price of the items you buy online. The percentage might look small, but it all adds up! Our supporters…

Throughout the coronavirus pandemic The Sandcastle Trust has been more committed than ever to supporting families affected by a rare genetic condition but sadly we have had to postpone many Sandcastle Memories that involve travel. We have therefore been working hard to diversify the way that we provide fun and…

The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board. Meet Mina. Mina is a journalist, the author of two cookbooks and an editor on the food desk at The Guardian. Before her daughter, Vida, was diagnosed with Diamond Blackfan Anaemia in…

A new interactive online patient tool has been developed to help people with rare diseases better understand their risk of Covid-19. There has been considerable anxiety and confusion among many people living with rare diseases about their level of risk from covid-19 and the precautions they should take. In response…

The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation, vulnerability and anxiousness that families affected by a rare genetic condition face every day. The children and adults with genetic disorders that The Sandcastle Trust supports are medically complex and…