News

A huge thank you to The Desford Striders Running Club who selected The Sandcastle Trust as their Charity of the Year in 2022. The Striders decided to fundraise for The

Unfortunately it has been announced that Amazon Smile, the scheme in which customers can donate 0.5% of the value of purchases to a charity of their choice, is being discontinued,

Our film ‘Oscar and Theo’s Sandcastle Memory’ is an entrant in this year’s Smiley Charity Film Awards! The Smiley Charity Film Awards is the world’s biggest campaign to promote cause-based

There are several ways to support us this Christmas, here are some ideas: Donate to our Christmas Appeal This year families living with a rare genetic condition are being hit

A heartfelt THANK YOU to these fundraising superstars who recently took on the Cycle Active Coast to Coast to raise much needed funds for The Sandcastle Trust.  They covered 143

This June The Sandcastle Trust hosted a virtual ‘Bake your Own’ Platinum Jubilee Family Afternoon Tea to help the rare genetic condition community come together to celebrate the Queen’s Platinum

A huge congratulations and THANK YOU to the cast of ‘A Night At the Musicals’ who bought the house down last night and raised much needed funds for The Sandcastle

The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.

Our Sandcastle Memories programme forms the core of our work and provides respite breaks to affected families.

For 12 days, from 6 – 21 December 2021, Ecclesiastical Insurance will be donating a total of £120,000 to charities. 120 lucky charities will each receive £1000 if their names

At the 2021 Spending Review, Rishi Sunak did not announce any dedicated COVID recovery, or long-term funding for disabled children’s health and care services. Several pots of non-ringfenced money were

The Sandcastle Trust had 2 amazing runners in the London Marathon on Sunday; Paula and Matt.  4 marvellous runners; Jenny, Bethany, Brett and Coral also completed the marathon virtually in their local areas

Looking to get rid of your clutter? Then why not donate to The Sandcastle Trust whilst doing so! By decluttering your home, you can donate your unwanted books, games, CDs

Make your online Christmas shopping clicks count this year! We’ve partnered with two popular fundraising schemes Amazon Smile and EasyFundraising – that support UK charities by donating a percentage of

The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board – Meet Mina.

A new interactive online patient tool has been developed to help people with rare diseases better understand their risk of Covid-19. There has been considerable anxiety and confusion among many

The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation, vulnerability and anxiousness that families affected by a rare genetic

The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation, vulnerability and anxiousness that families affected by a rare genetic

Having a family member with a rare genetic condition can sometimes be a lonely, isolating experience. Meeting with other families in a similar situation who ‘understand’ can be a vital

The Sandcastle Trust recently collaborated with Great Ormond Street Hospital to put on a party for some families whose children are affected by a group of very rare inherited metabolic

The Sandcastle Trust are proud to be part of the Disabled Children’s Partnership (DCP). and together we are asking the government to give back the £434 million shortfall in funding

The Sandcastle Trust is proud to have recently become a member of the Disabled Children’s Partnership – a growing coalition of more than 60 organisations – campaigning for improved health

On 18 December our lovely ambassador Laura Hamilton hosted a little Sandcastle Trust Christmas party for some families who have been affected by a rare genetic condition. The party was

Here at The Sandcastle Trust we believe that by working collaboratively with other rare genetic condition organisations we can achieve the greatest impact.  We were pleased to help fund The

We had a great day at the Kingston Rotary Dragon Boat Challenge. Team Sandcastle smashed it with a fastest time of 1.03.88 mins and raised over £1,700 to support The

The parents of Charlie Gard will launch The Charlie Gard Foundation on 1 June with the £1.3 million raised in his name. Charlie died in July last year, a week

Merry Christmas and a Happy New Year from The Sandcastle Trust.  We believe that a little fun goes a long way, which is why this Christmas our Sandcastle Santa Campaign

The Sandcastle Trust would like to say a heartfelt thank you to Gemma and Becki. Their little girls have 1p36 Deletion Syndrome. Together they have raised over £10,000 for The

We are looking for new trustees to join the board of The Sandcastle Trust and help us reach our vision, a future where a diagnosis of a rare genetic condition