A Message from The Sandcastle Trust Team

The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation, vulnerability and anxiousness that families affected by a rare genetic condition face every day. The health and wellbeing of our beneficiaries is our top priority and so we have had…
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The Disabled Children’s Partnership calls on the Government to #GiveitBack

The Sandcastle Trust are proud to be part of the Disabled Children’s Partnership (DCP). and together we are asking the government to give back the £434 million shortfall in funding for social care for disabled children and their families. Every day, disabled children are missing out on £1.2 million of…
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The Sandcastle Trust joins The Disabled Children’s Partnership

The Sandcastle Trust is proud to have recently become a member of the Disabled Children’s Partnership – a growing coalition of more than 60 organisations – campaigning for improved health and social care for disabled children, young people and their families in England. We know that 43% of the British…
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Ambassador Laura Hamilton hosts The Sandcastle Trust’s Christmas Party

On 18 December our lovely ambassador Laura Hamilton hosted a little Sandcastle Trust Christmas party for some families who have been affected by a rare genetic condition. The party was held at Laura’s coffee shop, The Lord Roberts on The Green. Gingerbread decorating, entertainment by the Giggle Company and of…
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Working with The Charlie Gard Foundation

The parents of Charlie Gard will launch The Charlie Gard Foundation on 1 June with the £1.3 million raised in his name. Charlie died in July last year, a week before his first birthday due to the rare genetic condition Mitochondrial DNA Depletion Syndrome. The Foundation aims to raise awareness…
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