A heartfelt THANK YOU to these fundraising superstars who recently took on the Cycle Active Coast to Coast to raise much needed funds...
Thank you to Danehill Primary School!
Date: 01-01-1970
A big THANK YOU to the wonderful pupils of Foxes class at Danehill Primary School. They held an art exhibition based on their topic this...
‘A Night At the Musicals’
Date: 01-01-1970
A huge congratulations and THANK YOU to the cast of ‘A Night At the Musicals’ who bought the house down last night and raised much...
The Sandcastle Trust Launches Holiday Home Appeal
Date: 01-01-1970
The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.
Our Sandcastle Memories programme forms the core of our work and provides respite breaks to affected families.
12 Days of Giving 2021
Date: 01-01-1970
For 12 days, from 6 – 21 December 2021, Ecclesiastical Insurance will be donating a total of £120,000 to charities.
120 lucky...
The Sandcastle Trust joins other organisations in the Disabled Children’s partnership and signs open letter to the government
Date: 01-01-1970
At the 2021 Spending Review, Rishi Sunak did not announce any dedicated COVID recovery, or long-term funding for disabled children’s...
Thank you to our 2021 London Marathon runners
Date: 01-01-1970
The Sandcastle Trust had 2 amazing runners in the London Marathon on Sunday; Paula and Matt. 4 marvellous runners; Jenny, Bethany, Brett and Coral also completed the marathon virtually in their local areas
Donate your unwanted items and raise money for The Sandcastle Trust
Date: 01-01-1970
Looking to get rid of your clutter? Then why not donate to The Sandcastle Trust whilst doing so!
By decluttering your home, you can...
Did you know you can support The Sandcastle Trust this Christmas just by shopping online – at no extra cost to you?
Date: 01-01-1970
Make your online Christmas shopping clicks count this year!
We've partnered with two popular fundraising schemes Amazon Smile and...
The Sandcastle Trust granted lottery funds
Date: 01-01-1970
Throughout the coronavirus pandemic The Sandcastle Trust has been more committed than ever to supporting families affected by a rare genetic condition but sadly we have had to postpone many Sandcastle Memories that involve travel. We have therefore been working hard to diversify the way that we provide fun and respite to affected families. Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund, has now helped us to launch a new category of support – ‘At Home’ Sandcastle Memories. You can find out more about ‘At Home’ Sandcastle Memories and download an application form here:
The Sandcastle Trust welcomes a new trustee onto its board
Date: 01-01-1970
The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board – Meet Mina.
NEW interactive online patient tool for people with rare diseases to better understand their risk of Covid-19
Date: 01-01-1970
A new interactive online patient tool has been developed to help people with rare diseases better understand their risk of Covid-19.
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The Sandcastle trust launches emergency coronavirus appeal
Date: 01-01-1970
The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation,...
Covid-19: A Message from The Sandcastle Trust Team
Date: 01-01-1970
The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation,...
The Sandcastle Trust supports 1P36 Deletion Syndrome patient group’s PJ Party!
Date: 01-01-1970
Having a family member with a rare genetic condition can sometimes be a lonely, isolating experience. Meeting with other families in a...
The Sandcastle Trust and Great Ormond Street work together to put on a party for families affected by Lysosomal Storage Diseases
Date: 01-01-1970
The Sandcastle Trust recently collaborated with Great Ormond Street Hospital to put on a party for some families whose children are...
The Disabled Children’s Partnership calls on the Government to #GiveitBack
Date: 01-01-1970
The Sandcastle Trust are proud to be part of the Disabled Children’s Partnership (DCP). and together we are asking the government to...
The Sandcastle Trust joins The Disabled Children’s Partnership
Date: 01-01-1970
The Sandcastle Trust is proud to have recently become a member of the Disabled Children’s Partnership – a growing coalition of...
Ambassador Laura Hamilton hosts The Sandcastle Trust’s Christmas Party
Date: 01-01-1970
On 18 December our lovely ambassador Laura Hamilton hosted a little Sandcastle Trust Christmas party for some families who have been...
The Sandcastle Trust supports The Batten Disease Family Association’s First Family Fun Day.
Date: 01-01-1970
Here at The Sandcastle Trust we believe that by working collaboratively with other rare genetic condition organisations we can achieve...
Team Sandcastle takes part in The Kingston Rotary Dragon Boat Challenge
Date: 01-01-1970
We had a great day at the Kingston Rotary Dragon Boat Challenge. Team Sandcastle smashed it with a fastest time of 1.03.88 mins and...
Working with The Charlie Gard Foundation
Date: 01-01-1970
The parents of Charlie Gard will launch The Charlie Gard Foundation on 1 June with the £1.3 million raised in his name. Charlie died in...
Merry Christmas and a Happy New Year!
Date: 01-01-1970
Merry Christmas and a Happy New Year from The Sandcastle Trust. We believe that a little fun goes a long way, which is why this...
The Final Cracker!
Date: 01-01-1970
The Sandcastle Trust would like to say a heartfelt thank you to Gemma and Becki. Their little girls have 1p36 Deletion Syndrome....
New Trustees
Date: 01-01-1970
We are looking for new trustees to join the board of The Sandcastle Trust and help us reach our vision, a future where a diagnosis of a...
West End stars perform in aid of The Sandcastle Trust
Date: 01-01-1970
Brilliant night last night at The Barn Theatre. A heartfelt thank you to Naomi Cobby, Sam Hiller, Nigel Garton, James Hume, Ciaran...
The Sandcastle Trust in the press
Date: 01-01-1970
Dylan, age 5 has 4q Deletion Syndrome. His story is in the press today, raising awareness of rare genetic conditions, The Sandcastle...
London Marathon
Date: 01-01-1970
A huge well done to Paul Stringer who completed the London Marathon in an amazing 3:27:27 and raised a phenomenal £2,895 for The...
