Sannah's Story

Sannah Fayyaz was 24 when she first visited London on a trip her family will never forget. Sannah, from Burnley, Lancs, has San Fillipo disease which, over 14 years, has slowly robbed this vibrant young woman of her abilities. But mum Feeraz says her daughter loves the hustle and bustle of cities and is a... Read More

Henry's Story

"Henry is three years old and has the rare genetic disorder Diamond Blackfan Anaemia.  This means that his bone marrow does not function correctly leaving him reliant on blood transfusions every 3-4 weeks to stay alive. We found out that Henry was poorly at our 12-week pregnancy scan, he had an increased nuchal measurement at... Read More

Elisia's Story

“When Elisia was born in April 2015 as far as we knew it she was ‘normal’, weighing a healthy 8lb 8oz.  She passed all her new-born screening tests and was absolutely gorgeous. We joined the standard classes and groups making mummy and baby friends at each one.  Everything was lovely for the first few months. ... Read More