Felix's Story

"In 2012 our third son Felix was born.  At only 2 weeks old it became apparent that he was struggling to thrive and we were consequently referred to a myriad of specialist healthcare services within the NHS.  All of them superbly caring and supportive.  Felix remained somewhat of an enigma to all involved in his care... Read More

Vinnie's Story

Kelly Harrison had a normal pregnancy with her second child, Vinnie James. But when her baby son was just four weeks old she noticed his muscles were unusually weak. He had no real strength in his neck and his arms were floppy. Kelly spoke to her health visitor who thought it wasn’t a cause for... Read More

Sannah's Story

Sannah Fayyaz was 24 when she first visited London on a trip her family will never forget. Sannah, from Burnley, Lancs, has San Fillipo disease which, over 14 years, has slowly robbed this vibrant young woman of her abilities. But mum Feeraz says her daughter loves the hustle and bustle of cities and is a... Read More