Looking to get rid of your clutter? Then why not donate to The Sandcastle Trust whilst doing so! By decluttering your home, you can donate your unwanted books, games, CDs and DVDs with Ziffit.com and Virgin Money Giving. It’s free…
Did you know you can support The Sandcastle Trust this Christmas just by shopping online – at no extra cost to you?
Date: 01-01-1970
Make your online Christmas shopping clicks count this year! We've partnered with two popular fundraising schemes Amazon Smile and EasyFundraising – that support UK charities by donating a percentage of the price of the items you buy online. The percentage…
The Sandcastle Trust granted lottery funds
Date: 01-01-1970
Throughout the coronavirus pandemic The Sandcastle Trust has been more committed than ever to supporting families affected by a rare genetic condition but sadly we have had to postpone many Sandcastle Memories that involve travel. We have therefore been working hard to diversify the way that we provide fun and respite to affected families. Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund, has now helped us to launch a new category of support – ‘At Home’ Sandcastle Memories. You can find out more about ‘At Home’ Sandcastle Memories and download an application form here:
The Sandcastle Trust welcomes a new trustee onto its board
Date: 01-01-1970
The Sandcastle Trust are very pleased to announce that we have had a new trustee join our board – Meet Mina.
NEW interactive online patient tool for people with rare diseases to better understand their risk of Covid-19
Date: 01-01-1970
A new interactive online patient tool has been developed to help people with rare diseases better understand their risk of Covid-19. There has been considerable anxiety and confusion among many people living with rare diseases about their level of risk…
The Sandcastle trust launches emergency coronavirus appeal
Date: 01-01-1970
The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation, vulnerability and anxiousness that families affected by a rare genetic condition face every day. The children and adults with genetic…
Covid-19: A Message from The Sandcastle Trust Team
Date: 01-01-1970
The current coronavirus pandemic is a challenging and uncertain time for everyone and is a real insight into the isolation, vulnerability and anxiousness that families affected by a rare genetic condition face every day. The health and wellbeing of our…
The Sandcastle Trust supports 1P36 Deletion Syndrome patient group’s PJ Party!
Date: 01-01-1970
Having a family member with a rare genetic condition can sometimes be a lonely, isolating experience. Meeting with other families in a similar situation who 'understand' can be a vital avenue of support and result in lasting friendships. (more…)
The Sandcastle Trust and Great Ormond Street work together to put on a party for families affected by Lysosomal Storage Diseases
Date: 01-01-1970
The Sandcastle Trust recently collaborated with Great Ormond Street Hospital to put on a party for some families whose children are affected by a group of very rare inherited metabolic disorders called Lysosomal Storage Diseases. (more…)
The Disabled Children’s Partnership calls on the Government to #GiveitBack
Date: 01-01-1970
The Sandcastle Trust are proud to be part of the Disabled Children’s Partnership (DCP). and together we are asking the government to give back the £434 million shortfall in funding for social care for disabled children and their families. Every…
The Sandcastle Trust joins The Disabled Children’s Partnership
Date: 01-01-1970
The Sandcastle Trust is proud to have recently become a member of the Disabled Children’s Partnership – a growing coalition of more than 60 organisations – campaigning for improved health and social care for disabled children, young people and their…
Ambassador Laura Hamilton hosts The Sandcastle Trust’s Christmas Party
Date: 01-01-1970
On 18 December our lovely ambassador Laura Hamilton hosted a little Sandcastle Trust Christmas party for some families who have been affected by a rare genetic condition. The party was held at Laura’s coffee shop, The Lord Roberts on The…
The Sandcastle Trust supports The Batten Disease Family Association’s First Family Fun Day.
Date: 01-01-1970
Here at The Sandcastle Trust we believe that by working collaboratively with other rare genetic condition organisations we can achieve the greatest impact. We were pleased to help fund The Batten Disease Family Association’s recent family fun day held at…
Team Sandcastle takes part in The Kingston Rotary Dragon Boat Challenge
Date: 01-01-1970
We had a great day at the Kingston Rotary Dragon Boat Challenge. Team Sandcastle smashed it with a fastest time of 1.03.88 mins and raised over £1,700 to support The Sandcastle Trust’s work! #supersupporters
Merry Christmas and a Happy New Year!
Date: 01-01-1970
Merry Christmas and a Happy New Year from The Sandcastle Trust. We believe that a little fun goes a long way, which is why this Christmas our Sandcastle Santa Campaign provided 108 families who have been affected by a rare…
The Final Cracker!
Date: 01-01-1970
The Sandcastle Trust would like to say a heartfelt thank you to Gemma and Becki. Their little girls have 1p36 Deletion Syndrome. Together they have raised over £10,000 for The Sandcastle Trust this year, an astronomical amount for a tiny…
West End stars perform in aid of The Sandcastle Trust
Date: 01-01-1970
Brilliant night last night at The Barn Theatre. A heartfelt thank you to Naomi Cobby, Sam Hiller, Nigel Garton, James Hume, Ciaran Bowling, Adam Bayjou, Joanna Loxton, Grace Gardner, Alice Ellen Wright, Annatt Bass and Neil Shaw - the stars…
The Sandcastle Trust in the press
Date: 01-01-1970
Dylan, age 5 has 4q Deletion Syndrome. His story is in the press today, raising awareness of rare genetic conditions, The Sandcastle Trust and the #jeansforgenes campaign http://www.theargus.co.uk/…/15483776.Dylan__5__can___t_sp…/…
London Marathon
Date: 01-01-1970
A huge well done to Paul Stringer who completed the London Marathon in an amazing 3:27:27 and raised a phenomenal £2,895 for The Sandcastle Trust A heartfelt thankyou to Paul as despite having a ballot place he decided to raise…
