Felix's Story

"In 2012 our third son Felix was born.  At only 2 weeks old it became apparent that he was struggling to thrive and we were consequently referred to a myriad of specialist healthcare services within the NHS.  All of them superbly caring and supportive.  Felix remained somewhat of an enigma to all involved in his care... Read More

Vinnie's Story

Kelly Harrison had a normal pregnancy with her second child, Vinnie James. But when her baby son was just four weeks old she noticed his muscles were unusually weak. He had no real strength in his neck and his arms were floppy. Kelly spoke to her health visitor who thought it wasn’t a cause for... Read More

Olivia’s story

Ten-year-old Olivia Peterson was born with an extremely rare genetic condition which causes a build-up of ammonia in the bloodstream. It led to her becoming critically ill days after her birth and has left her with life-long health conditions. Olivia was born healthy in 2012 and her mum Emma took her home from hospital the... Read More