Eddie's Story
Eddie Braun is a loud, sometimes cheeky four-year-old who is determined to let his mum know exactly what he wants. His default setting is happiness, despite the numerous challenges he faces. He absolutely loves cycling and swimming. Eddie has an ultra-rare genetic condition caused by the genetic mutation COL4A2 which is linked to small blood... Read More
Kirsten’s story
It’s not just families with young children to benefit from The Sandcastle Trust’s accessible holiday breaks. Families with adult children with genetic conditions can also apply to our Sandcastle Memories programme, and benefit from a day out with their family, or a fully accessible UK holiday. These respite breaks are invaluable for families such as... Read More
Maddison's Story
Feisty, confident Maddison Sherwood dreams of being an actress. The ten-year-old student goes to drama school in her spare time and loves nothing more than singing and dancing. Maddison has the rare genetic disorder Spinal Muscular Atrophy with Respiratory Distress (SMARD) which means she uses a ventilator and tracheotomy to help her breathe and... Read More
