Jacob's Story
When their baby son Jacob was diagnosed with a life-limiting genetic disorder parents Gemma and Kevin Rimmer knew their world had changed forever. Gemma, from Liverpool, says: “We realised our gorgeous boy would need 24-hour care. I had to give up work as a hairdresser. Kevin had to leave a good job on the railways... Read More
Cally's Story
Mum Cally Benvie, 30, from Broughty Ferry, Dundee, is a wheelchair user after being diagnosed with the degenerative genetic disorder Friedreich’s Ataxia as a teenager. She enjoyed a blissful weekend Center Parcs in Whinfell Forest, Penrith, with partner Alan Moffatt, 33, an NHS porter, son Jay, 10, mum Jill, a nurse, and her mum’s partner... Read More
Alfie’s Story
Alfie O’Brien, 13, was born with a rare genetic eye condition, which means he has no vision. He also has autism and complex behavioural needs, including extreme self-harming. In July 2021 Alfie had surgery to remove an eye and after recovering from the operation he wasn’t able to return to his special needs school. This... Read More
