Ruby's Story
Ruby is 5 and has Angelman Syndrome. Ruby has a little sister called Lily and a little brother called Toby. Ruby’s mum Felicity described Ruby as being “full of fun and mischief and she gives THE best cuddles and smiles.” Ruby had a difficult birth in that she wasn’t breathing, had suspected sepsis and spent... Read More
Carmela's Story
Lucy Chillery-Watson, 44, is mum to Carmela, six, who has LMNA Congenital Muscular Dystrophy, a rare genetic form of the condition. They live in Devizes, Wiltshire, with dad Darren, 49. Lucy said: “When Carmela was born she wasn’t breathing, but the doctors managed to resuscitate her and she then developed as a normal baby. “But... Read More
Jamie's Story
Jamie Tyler was three years old when he died in April 2019 from the rare genetic condition Leigh’s Disease. Jamie’s family were gifted a stay in the CBeebies Land Hotel at Alton Towers by the Sandcastle Trust in his memory. Here Jamie’s mum Sam, 36, from Hereford, explains how much the trip means to them.... Read More
