Jamie's Story
Jamie Tyler was three years old when he died in April 2019 from the rare genetic condition Leigh’s Disease. Jamie’s family were gifted a stay in the CBeebies Land Hotel at Alton Towers by the Sandcastle Trust in his memory. Here Jamie’s mum Sam, 36, from Hereford, explains how much the trip means to them.... Read More
Kennedy's Story
Kennedy Mercer was five months old when a rare genetic condition claimed the life of her twin brother Karter. Kennedy has the same condition, Spinal Muscular Atrophy Type 1. Both twins were diagnosed with the disease before turning six-months-old. Babies with it usually die within two years, often as a result of serious breathing difficulties,... Read More
Tilly's Story
"Our little girl Matilda, Tilly, was diagnosed with Rett Syndrome in March 2018. Tilly had developed normally until she was one, with no concerns whatsoever, but then started to gradually lose her skills. Rett is a rare genetic neuro-developmental condition affecting mainly girls leaving them profoundly disabled. Rett means Tilly cannot walk, talk, use her... Read More
