Elisia's Story
“When Elisia was born in April 2015 as far as we knew it she was ‘normal’, weighing a healthy 8lb 8oz. She passed all her new-born screening tests and was absolutely gorgeous. We joined the standard classes and groups making mummy and baby friends at each one. Everything was lovely for the first few months. ... Read More
Ruby's Story
Ruby is 5 and has Angelman Syndrome. Ruby has a little sister called Lily and a little brother called Toby. Ruby’s mum Felicity described Ruby as being “full of fun and mischief and she gives THE best cuddles and smiles.” Ruby had a difficult birth in that she wasn’t breathing, had suspected sepsis and spent... Read More
Carmela's Story
Lucy Chillery-Watson, 44, is mum to Carmela, six, who has LMNA Congenital Muscular Dystrophy, a rare genetic form of the condition. They live in Devizes, Wiltshire, with dad Darren, 49. Lucy said: “When Carmela was born she wasn’t breathing, but the doctors managed to resuscitate her and she then developed as a normal baby. “But... Read More
