Harry’s Story
Harry Degiorgio’s first birthday should have been a fun filled day with family, cake, balloons and presents. But instead, Harry woke up on the morning of his birthday in a hospital bed after an hour-long seizure. Worse was to come a few weeks later when little Harry had ten seizures in 72 hours. The fear... Read More
Ruairi’s story
Like most 28-year-olds Ruairi Corr wants to live an active life, travel independently and enjoy new experiences. Ruairi loves swimming, hiking, mountain climbing and has even been sky diving – all incredible as Ruairi has the rare genetic condition adrenoleukodystrophy (ALD) and is registered blind, hearing impaired and has epilepsy. Despite his complex needs, Ruairi,... Read More
Ivan’s story
Three-year-old Ivan Novak was born with the very rare genetic condition Phelan McDermid syndrome (PMS) which affects development, mobility, speech, digestion and shares similarities with autism. Ivan’s parents Elissa, 32 and Joe, 33, first became concerned when Ivan – their only child - was seven-months-old and was delayed reaching milestones. “It was during the first... Read More
