Maisie's Story
Sixteen-year-old Maisie Doswell suffers from such debilitating headaches she has to spend most of the day lying flat on her bed. Maisie has the rare genetic disorder Myhre Syndrome, of which there are only thought to be 30-40 reported cases worldwide. From the age of seven she has suffered from excruciating headaches – caused by... Read More
Tayen's Story
Tayen Gilbert, seven years old, is funny, clever and crafty. She knows just how to keep her family on their toes. Tayen, has Neurofibromatosis (NF1), which causes tumours to grow along her nerves. As a result of her tumours, Tayen is fully blind and is brain damaged. She also has complex epilepsy and has hydrocephalus... Read More
Tehyah's Story
"On 21st July 2010 a little angel was born, my granddaughter, Tehyah. Seemingly healthy, our little princess Tehyah went through life being a gorgeous, cheeky little madam! On the 11th March 2014 Tehyah went skipping off to nursery laughing. However, at dinner time we had a call to say she was unwell and we should... Read More
