Freddie's Story
Little Freddie Skinner didn’t have a voice until he was two. When he was just five weeks old doctors cut into his windpipe and inserted a tube, to help him breathe. While the procedure gave him life, it took away his ability to speak. Mum Laura says: “When he had the tube removed two years... Read More
Sannah's Story
Sannah Fayyaz was 24 when she first visited London on a trip her family will never forget. Sannah, from Burnley, Lancs, has San Fillipo disease which, over 14 years, has slowly robbed this vibrant young woman of her abilities. But mum Feeraz says her daughter loves the hustle and bustle of cities and is a... Read More
Henry's Story
"Henry is three years old and has the rare genetic disorder Diamond Blackfan Anaemia. This means that his bone marrow does not function correctly leaving him reliant on blood transfusions every 3-4 weeks to stay alive. We found out that Henry was poorly at our 12-week pregnancy scan, he had an increased nuchal measurement at... Read More
