Fraser's Story
Amy Wilton, 36, is mum to Frazer, seven, who has the genetic condition late-infantile Batten Disease. They live in Torquay, Devon, with Frazer’s older brother Alfie, 11. Amy said: “I had a completely normal pregnancy with Frazer, and he developed like any other baby. He hit all his milestones, he learned to walk and talk,... Read More
Josselin's Story
Karen Tilley, 40, is mum to Josselin, 14, who has the rare genetic condition CHARGE syndrome. They live near Bath with dad Lee, 43 and Josselin’s brothers Alex, 16 and Dalton, eight. The family have been on several trips to see Santa courtesy of The Sandcastle Trust, but this year they’ll be having a festive... Read More
Oliver's Story
Oliver was born 7 weeks prematurely and had a difficult start in the NICU where he suffered a lung collapse and was on a ventilator for a while. When he recovered and came home it was hoped there would be no lasting effects from his early problems. However, it quickly became apparent that he was... Read More
