Cally's Story
Mum Cally Benvie, 30, from Broughty Ferry, Dundee, is a wheelchair user after being diagnosed with the degenerative genetic disorder Friedreich’s Ataxia as a teenager. She enjoyed a blissful weekend Center Parcs in Whinfell Forest, Penrith, with partner Alan Moffatt, 33, an NHS porter, son Jay, 10, mum Jill, a nurse, and her mum’s partner... Read More
Alfie’s Story
Alfie O’Brien, 13, was born with a rare genetic eye condition, which means he has no vision. He also has autism and complex behavioural needs, including extreme self-harming. In July 2021 Alfie had surgery to remove an eye and after recovering from the operation he wasn’t able to return to his special needs school. This... Read More
Karen's Story
Karen Clark, 46, from Horsham, West Sussex, has spinocerebellar ataxia type III (SCA 3), a hereditary genetic condition which affects balance, walking, grip, speech, swallowing and ultimately breathing. It is a life-limiting condition and Karen, who was diagnosed at the age of 30, is in the later stages of the disease. Karen lives in Horsham,... Read More
