Whether you are affected personally or are a family member or carer of a person with a rare genetic condition, here’s where you’ll find out how we can help you.
Find out more about the support we offer to families who have been affected by a rare genetic condition and how to apply here.Read More
Information & Support
A list of organisations and other sources of guidance, advice and practical help that you may find useful if you or a family member has been diagnosed with a rare genetic condition.Find Out More
Answers to the most frequently asked questions about our Sandcastle Family Experiences and the application process.Find Out More