Whether you are affected personally or are a family member or carer of a person with a rare genetic condition, here’s where you’ll find out how we can help you.


Find out more about the support we offer to families who have been affected by a rare genetic condition and how to apply here.

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Information & Support

A list of organisations and other sources of guidance, advice and practical help that you may find useful if you or a family member has been diagnosed with a rare genetic condition.

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Answers to the most frequently asked questions about our Sandcastle Family Experiences and the application process.

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Sandcastle Santa