Henry's Story
"Henry is three years old and has the rare genetic disorder Diamond Blackfan Anaemia. This means that his bone marrow does not function correctly leaving him reliant on blood transfusions every 3-4 weeks to stay alive. We found out that Henry was poorly at our 12-week pregnancy scan, he had an increased nuchal measurement at... Read More
Elisia's Story
“When Elisia was born in April 2015 as far as we knew it she was ‘normal’, weighing a healthy 8lb 8oz. She passed all her new-born screening tests and was absolutely gorgeous. We joined the standard classes and groups making mummy and baby friends at each one. Everything was lovely for the first few months. ... Read More
Jamie's Story
Jamie Tyler was three years old when he died in April 2019 from the rare genetic condition Leigh’s Disease. Jamie’s family were gifted a stay in the CBeebies Land Hotel at Alton Towers by the Sandcastle Trust in his memory. Here Jamie’s mum Sam, 36, from Hereford, explains how much the trip means to them.... Read More
