Cally's Story

Mum Cally Benvie, 30, from Broughty Ferry, Dundee, is a wheelchair user after being diagnosed with the degenerative genetic disorder Friedreich’s Ataxia as a teenager. She enjoyed a blissful weekend Center Parcs in Whinfell Forest, Penrith, with partner Alan Moffatt, 33, an NHS porter, son Jay, 10, mum Jill, a nurse, and her mum’s partner... Read More

Maisie's Story

Sixteen-year-old Maisie Doswell suffers from such debilitating headaches she has to spend most of the day lying flat on her bed.  Maisie has the rare genetic disorder Myhre Syndrome, of which there are only thought to be 30-40 reported cases worldwide. From the age of seven she has suffered from excruciating headaches – caused by... Read More

Tayen's Story

Tayen Gilbert, seven years old, is funny, clever and crafty. She knows just how to keep her family on their toes. Tayen, has Neurofibromatosis (NF1), which causes tumours to grow along her nerves. As a result of her tumours, Tayen is fully blind and is brain damaged. She also has complex epilepsy and has hydrocephalus... Read More