Having a family member with a rare genetic condition can sometimes be a lonely, isolating experience. Meeting with other families in a...
The Sandcastle Trust and Great Ormond Street work together to put on a party for families affected by Lysosomal Storage Diseases
Date: 01-01-1970
The Sandcastle Trust recently collaborated with Great Ormond Street Hospital to put on a party for some families whose children are...
The Disabled Children’s Partnership calls on the Government to #GiveitBack
Date: 01-01-1970
The Sandcastle Trust are proud to be part of the Disabled Children’s Partnership (DCP). and together we are asking the government to...
The Sandcastle Trust joins The Disabled Children’s Partnership
Date: 01-01-1970
The Sandcastle Trust is proud to have recently become a member of the Disabled Children’s Partnership – a growing coalition of...
Ambassador Laura Hamilton hosts The Sandcastle Trust’s Christmas Party
Date: 01-01-1970
On 18 December our lovely ambassador Laura Hamilton hosted a little Sandcastle Trust Christmas party for some families who have been...
The Sandcastle Trust supports The Batten Disease Family Association’s First Family Fun Day.
Date: 01-01-1970
Here at The Sandcastle Trust we believe that by working collaboratively with other rare genetic condition organisations we can achieve...
Team Sandcastle takes part in The Kingston Rotary Dragon Boat Challenge
Date: 01-01-1970
We had a great day at the Kingston Rotary Dragon Boat Challenge. Team Sandcastle smashed it with a fastest time of 1.03.88 mins and...
Working with The Charlie Gard Foundation
Date: 01-01-1970
The parents of Charlie Gard will launch The Charlie Gard Foundation on 1 June with the £1.3 million raised in his name. Charlie died in...
Merry Christmas and a Happy New Year!
Date: 01-01-1970
Merry Christmas and a Happy New Year from The Sandcastle Trust. We believe that a little fun goes a long way, which is why this...
The Final Cracker!
Date: 01-01-1970
The Sandcastle Trust would like to say a heartfelt thank you to Gemma and Becki. Their little girls have 1p36 Deletion Syndrome....
New Trustees
Date: 01-01-1970
We are looking for new trustees to join the board of The Sandcastle Trust and help us reach our vision, a future where a diagnosis of a...
West End stars perform in aid of The Sandcastle Trust
Date: 01-01-1970
Brilliant night last night at The Barn Theatre. A heartfelt thank you to Naomi Cobby, Sam Hiller, Nigel Garton, James Hume, Ciaran...
The Sandcastle Trust in the press
Date: 01-01-1970
Dylan, age 5 has 4q Deletion Syndrome. His story is in the press today, raising awareness of rare genetic conditions, The Sandcastle...
London Marathon
Date: 01-01-1970
A huge well done to Paul Stringer who completed the London Marathon in an amazing 3:27:27 and raised a phenomenal £2,895 for The...
