Having a family member with a rare genetic condition can sometimes be a lonely, isolating experience. Meeting with other families in a...
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Having a family member with a rare genetic condition can sometimes be a lonely, isolating experience. Meeting with other families in a...
The Sandcastle Trust recently collaborated with Great Ormond Street Hospital to put on a party for some families whose children are...
The Sandcastle Trust are proud to be part of the Disabled Children’s Partnership (DCP). and together we are asking the government to...
The Sandcastle Trust is proud to have recently become a member of the Disabled Children’s Partnership – a growing coalition of...
On 18 December our lovely ambassador Laura Hamilton hosted a little Sandcastle Trust Christmas party for some families who have been...
Here at The Sandcastle Trust we believe that by working collaboratively with other rare genetic condition organisations we can achieve...
We had a great day at the Kingston Rotary Dragon Boat Challenge. Team Sandcastle smashed it with a fastest time of 1.03.88 mins and...
The parents of Charlie Gard will launch The Charlie Gard Foundation on 1 June with the £1.3 million raised in his name. Charlie died in...
Merry Christmas and a Happy New Year from The Sandcastle Trust. We believe that a little fun goes a long way, which is why this...
The Sandcastle Trust would like to say a heartfelt thank you to Gemma and Becki. Their little girls have 1p36 Deletion Syndrome....
We are looking for new trustees to join the board of The Sandcastle Trust and help us reach our vision, a future where a diagnosis of a...
Brilliant night last night at The Barn Theatre. A heartfelt thank you to Naomi Cobby, Sam Hiller, Nigel Garton, James Hume, Ciaran...
Dylan, age 5 has 4q Deletion Syndrome. His story is in the press today, raising awareness of rare genetic conditions, The Sandcastle...
A huge well done to Paul Stringer who completed the London Marathon in an amazing 3:27:27 and raised a phenomenal £2,895 for The...