The Sandcastle Trust walks alongside families living with a rare genetic condition providing a range of services with a unified focus on improving the emotional wellbeing and resilience of the entire family.
Start Here - Registration
Register as a Sandcastle Family - In order to be able to access our services, we ask that families complete an online registration form.
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Sandcastle Connections
Find out how our Sandcastle Connections Service alleviates social isolation by helping families build connections across the rare genetic condition community.
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Sandcastle Support Hub
A list of organisations and other sources of guidance, advice and practical help that you may find useful if you or a family member has been diagnosed with a rare genetic condition.
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Sandcastle Counselling Service
We provide a free, confidential counselling service for those impacted by rare genetic conditions aged 18+. Whether you are living with a diagnosis of a rare genetic condition yourself, are a parent / guardian or are bereaved, our service is open to you.
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Family Respite Breaks & Activities
Find out how you can apply to our Family Respite Service for a 'Sandcastle Memory' in the form of a short break, special day trip, or annual attraction pass or, a 'Sandcastle Smile' which is our programme of home-based family respite activities.
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