Vinnie's Story
Kelly Harrison had a normal pregnancy with her second child, Vinnie James. But when her baby son was just four weeks old she noticed his muscles were unusually weak. He had no real strength in his neck and his arms were floppy. Kelly spoke to her health visitor who thought it wasn’t a cause for... Read More
Olivia’s story
Ten-year-old Olivia Peterson was born with an extremely rare genetic condition which causes a build-up of ammonia in the bloodstream. It led to her becoming critically ill days after her birth and has left her with life-long health conditions. Olivia was born healthy in 2012 and her mum Emma took her home from hospital the... Read More
Amy's Story
Amy Moses is 25 and was born with the rare genetic condition Coffin Lowry Syndrome (CLS), which causes complex needs. Amy lives with her parents Kerrie Thomas, 44, and Dad Nigel Moses, 51, in Gwent, Wales. When Amy was six weeks old, Kerrie saw her doctor, worried their new-born was floppy and couldn’t lift her... Read More
