Kirsten’s story
It’s not just families with young children to benefit from The Sandcastle Trust’s accessible holiday breaks. Families with adult children with genetic conditions can also apply to our Sandcastle Memories programme, and benefit from a day out with their family, or a fully accessible UK holiday. These respite breaks are invaluable for families such as... Read More
Maddison's Story
Feisty, confident Maddison Sherwood dreams of being an actress. The ten-year-old student goes to drama school in her spare time and loves nothing more than singing and dancing. Maddison has the rare genetic disorder Spinal Muscular Atrophy with Respiratory Distress (SMARD) which means she uses a ventilator and tracheotomy to help her breathe and... Read More
Felix's Story
"In 2012 our third son Felix was born. At only 2 weeks old it became apparent that he was struggling to thrive and we were consequently referred to a myriad of specialist healthcare services within the NHS. All of them superbly caring and supportive. Felix remained somewhat of an enigma to all involved in his care... Read More
