The Sandcastle Trust provides families impacted by a rare genetic condition with opportunities to access a range of services that support emotional wellbeing and resilience. Our five Sandcastle Support Services are:
- Sandcastle Memories – family respite service
- Sandcastle Smiles – home based family respite activities
- Sandcastle Connections – reducing insolation and building a supportive rare genetic condition community
- Sandcastle Support Hub
- Sandcastle Counselling Service
You are eligible to register as a Sandcastle Family to access The Sandcastle Trust’s support if an individual (or individuals) in your family have been diagnosed with a rare genetic condition that affects less than 5 in 10,000 of the general population, and that condition has had an enduring impact on family life.
We ask that you register with us as a Sandcastle Family so that we can try to better understand the needs of families in our rare genetic condition community, identify gaps in provision, shape our support and keep you up to date with what we are up to. Please note, this form is not an application form. Once a member of our team has processed your registration, we’ll be in touch to share more information about the different services we offer and how to apply for each of them.
By completing this registration form, you are consenting to The Sandcastle Trust processing the information that you provide and retaining it on our database. Please be assured that we hold all personal data securely and confidentially. Your data will not be shared with any third party and you can request to be removed from all/or part The Sandcastle Trust’s services at any time.
