For those living with the challenges of rare genetic condition, and their families, a short break away is a simple way to help prevent burnout, ease pressure on relationships and create positive shared experiences -yet they often feel out of reach.
Most ‘affordable’ mainstream holiday accommodation is not accessible, and specialist providers are incredibly expensive. At the same time, many families are already under significant financial pressure due to facing additional costs that disability benefits don’t fully cover, while caring responsibilities can mean reducing hours or giving up work altogether.
As a result, many families go without a break.
Our Family Respite Service provides free accessible breaks, breaking down these barriers and providing families with the opportunity to spend quality time together away from their daily routine to refresh and support their wellbeing.
But we face a challenge:
Wheelchair accessible caravans typically only come as two-bedroom units. This means larger families often wait much longer for a break via our service, as their needs can only be met through far more expensive specialist accommodation.
We’re very close to changing that, but we need your help…
