The Rare Café is an online peer support and wellbeing community for people living with rare genetic conditions and their families.
Grab a coffee or a cuppa, pull up a chair, and welcome to The Rare Cafe!
If you’re living with a rare genetic condition, or supporting someone who is you’ll know this journey can sometimes feel overwhelming, uncertain and at times, lonely. This space exists to change that.
The Rare Café is an online peer support and wellbeing community for anyone over the age 18 impacted by rare genetic conditions.
Whether you are a parent carer, a partner or spouse, or an adult living with a rare genetic condition yourself – this space is for you.
In the Café you will find:
Community 💬
A welcoming place to share experiences, ask questions and chat with others who truly understand the unique challenges of life with a rare genetic condition.
Connections 🤝
Our AI-supported connection tools that will help you find and connect with people who share the same diagnosis or are navigating similar experiences.
Events & Workshops 🎓
A programme of free online events, workshops and talks led by experts and people with lived experience. Explore practical strategies, learn new skills and discover fresh ways to support your wellbeing.
Resources 📚
A growing library of helpful resources, recorded sessions and wellbeing tools that you can explore whenever it suits you, helping you build your own personalised wellbeing toolkit.
